By annoyed - 12/7/2021 21:01 - United Kingdom - Banbury

Second opinion

Today, after three years of being in physical pain, which affects my health and daily life, I was told it's an undiagnosable condition that I'll have to deal with for a long time, as there are no answers and no fixable solution. FML
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By  kaymyname  |  7

I had too had chronic pain for over three years with no clear diagnosis. Standing up to brush my teeth or take a shower was so painful it would bring me to tears. It wasn't until I switched doctors (3 times) and actually had someone who cared and wanted help me.That doctor sent me to a rheumatologist and I was diagnosed with an autoimmune disease that there is no test for. I was just tested for every other immune disease and combined with my symptoms and blood work I was finally given a diagnosis. I was prescribed medication and its the best I've felt in years. There are doctors who will help! It may take awhile but you have to find them. Hang in there OP!

COMMENTS
By  kaymyname  |  7

I had too had chronic pain for over three years with no clear diagnosis. Standing up to brush my teeth or take a shower was so painful it would bring me to tears. It wasn't until I switched doctors (3 times) and actually had someone who cared and wanted help me.That doctor sent me to a rheumatologist and I was diagnosed with an autoimmune disease that there is no test for. I was just tested for every other immune disease and combined with my symptoms and blood work I was finally given a diagnosis. I was prescribed medication and its the best I've felt in years. There are doctors who will help! It may take awhile but you have to find them. Hang in there OP!

By  TwoBytesCarley  |  19

I agree with both comments above. I also struggle with chronic pain, actually paralyzing me for several days at a time. It took 2 years, seeing several doctors and specialists and finally going to the Mayo Clinic to receive a diagnosis. Although the pain will never completely go away, medication, yoga and changes to my diet have made a massive difference.

In my search for an answer I had two doctors in particular pretty much tell me exactly what you’ve been told. Don’t listen to them. Make sure to be referred to specialists as GPs aren’t always up to date on all issues, and if you can get to a medical research facility, do so.

By  eellik  |  8

Not as bad as some others here, but I suffered from weird leg pains at night which the orthopedist couldn't diagnose. Xrays came back normal, no arthritis or rheumatic condition.

Then I started using a home exercise bike and did some stretching after that, which did away with the random pains. My guess is that it was the tendons or muscles that caused this, and just some light sport was enough to get rid of it.

By  Amanda G Rich  |  23

This is why I hate doctors. same happened to me but instead of pain it's constant vomiting and falling over. I can't work or function but can't get disability because it's undiagnosed. I would say go to other doctors, but that never helped me. Try to get into a mayo clinic. you'll have to apply like a dozen times because they usually deny people due to other more worrisome cases. But I think eventually they'll get you in. Gotta have some hope you know?