81
Add a comment
You must be logged in to be able to post comments!
Create my account Sign in
Top comments
Comments
Reply

there's no real treatment for MS, but the diagnosis is by elimination, so there are other worse things that OP now knows it's not.

Reply

there is plenty of treatment for MS, but no cure....... I've been on treatment for the last ten years and I'm as healthy as anyone else, i just get a tired a bit quicker.

Reply

No, he's not. This FML clearly proves that he does have poor manner when it comes to breaking news like that.

Reply

Hey #54, I didn't say the doctor had poor manner(s). I said he has poor bedside manner, which means he has a poor way of breaking/dealing bad news to people.

Reply

I'm sorry but do you know what MS does? It's not treatable and "seriously affected" by it? You'd honestly be better off getting cancer there's likely a chance you can recover MS kills you painfully and slowly. Asshole.

Reply

Treating it won't stop you from getting seriously affected by it, it might only slow it down, and that's not even a guarantee. Not to mention the treatments can have some seriously unpleasant side effects. There's no cure for MS.

Reply

Would you rather learn by feeling it's full effects and then being diagnosed or know whats coming in advance. I'd rather know up front.

Reply

So people should be happy if they find out they have cancer or other diseases? No. It's better than the alternative but it's still not happy or good news.

Sorry Op, he could have worded that better. At least it has been discovered though and you can get on the track to recovery.

Reply

some doctors just don't deal well with telling a patient they have a life long disease. unfortunate. two stories: 1) I had a life threatening blood clot. the radiologist who discovered it presented it to me by, literally, screaming at me, "do you know you have a blood clot". guess I was the first patient of the day likely to die in his office? 2) my family doctor had a colleague in med school who told someone they had cancer by saying, "hey yeah so you have cancer, lemme get someo

Reply

Very sorry to hear about your blood clot. I hope you are okay now. Yeah, some people just shouldn't be in their chosen profession.

Reply

You don't recover from MS, you can sometimes treat the symptoms, or slow them down, but the treatment can often be worse than the attacks.

Reply

the treatment is in no way worse than the attacks. the side effects are in general very mild such as fever and nausea (same as most other medicines), yes with one medicine there is one very serious side effect but the chances of getting that are very slim and when on that treatment you get blood tests and MRIs done frequently to ensure that it can be treated before it becomes serious. so i would suggest stop trying to scare someone that is obviously upset over there new diagnoses when you don't

Reply

I've been procrastinating treatment due to fear of side effects and a flare up. But thank you for giving me hope. I don't feel so alone. It's unbelievable how many people tell me they will pray for healthy eating cure or lessen a flare up.

Reply

I wouldn't put off treatment if i was you...... the treatment will delay any further lesions from forming and lesson the symptoms of any further attacks.... the longer you put it off any damage that will be done could possibly be irreversible. personally, i've been on 3 different meds over the past 10 years... its just a matter of finding the one thats right for you....the one i've been on since 2009 is the one with the 'serious side effect' but as i said, your so closely monitored while on that

Reply

I won't pretend to know what Op or any other MS sufferers are going through, but I have an aunty with MS and they managed to find a treatment for her so hopefully that will give you hope.

Reply

I said it often can be, not that it flat out is worse. I have an aunt and a cousin on different sides of the family, both with MS, both with fairly mild but regular attacks and they have both said before that the near constant nausea, headaches, anxiety, palpitations and shortness of breath regularly make them feel as if they treatment isn't worth at, as it doesn't actually treat all of the symptoms. The treatments given to my cousin (who is 27) have also made her infertile and to an extent has

Reply

What was she given that made her infertile? I have MS and have been on Copaxone, I'm hoping it's not the same one.

Reply

Is Copaxone Glatiramer acetate? She's never been on that. She's been on a few different ones due to the liver damage, and her doctors aren't 100% sure which one caused the infertility but they think it's most likely to have been Interferon beta 1b. She's been on that, Novantrone and Lemtrada.

Too many negative votes, comment buried. Show the comment

Reply

I have a life long irreversible bone disease. My brother was trying the paleo lifestyle and swore it would fix my bone disease. I told him I find it pretty offensive that he'd say that and he realized how disrespectful it was. Don't tell people crap like that. A healthy lifestyle will likely help, but it's not dependent on a certain diet.

Reply

A close friend of mine's father has MS, and has been avoiding animal fats for 25+ years on the basis of this idea, he has no idea if being vegetarian has helped his condition or slowed its progress but he figured it wasn't worth the risk

Be strong OP, I have an aunt with MS and it can be difficult. You control it, don't let it control you.

By  KaD6

Too many negative votes, comment buried. Show the comment

Reply

Strongly? I've gotten blood drawn multiple times for years and not once was my vitamin D low. And I was just recently diagnosised with it. Where did you get this information from? On another note, OP. They found out I had it due to an ER visit because I couldn't move the left side of my body.

Reply

#11, that is not an accurate statement. This is something someone at Whole Foods will tell you, or someone who practices holistic medicine. If you correct a patients vitamin D level, the progression of the disease will not be slowed down at all, especially since the current belief is that it is an autoimmune disease (a disease in which the body attacks itself). For those saying how awful the doctor is, I do not belief that to be the case. It was a good finding because now the disease can be trea

Loading data…