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My brother has ALPS (autoimmune lymphoproliferative syndrome). It's super rare and has a high fatality rate but as he got older, his body fought it off. Now he's healthy as a horse. Don't give up!

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Okay think for a second. Op is talking to the sister about the subject of the disease. If they weren't close op wouldn't continue to confide into the sister, let alone take that much offense to her opinion.

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How did this conversation devolve into dissecting OP's words to discover the semantics behind then and being able to then decipher the nature of the sibling relationship? How about we agree that we have no way of know how close the siblings are (unless OP clarifies) and that the bottom line is that the sister is an unsupportive bitch.

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Btw, #33, yes that assumption that the siblings are close could end up being incorrect, but it's a natural assumption to make. You didn't need to make a big deal out of someone making that assumption. It seems like you are projecting here...

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I'm not "close", persay, with my sister. If I found out I had a potentionally fatal disease, hell yeah I'd inform her. If they weren't on speaking terms and the sister found out from OP's parents, she wouldn't be able to judge OP's reaction the way she did, rendering this entire argument moot. I also read into her acting like a "melodramatic teenager" as if OP is no longer in her teens and is an adult. This could be untrue, but that was my interpretation.

By  geido

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Thank you #29, that is what I meant by that I hope that OP can deal with the disease. And #24 my mother has the same thing and there are days she feels awful and days she feels great and the feeling great can last a long time sometimes so I was just wishing OP can feel great more than awful. There is nothing wrong with giving OP positive energy to get through this

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well its not that she can get better. I have 3 autoimmune diseases and you just have to live with them but by get better #4 probably meant that it will be easier to cope with. I'm sorry your sister isn't very sympathetic towards you OP.

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I have been dealing with my own autoimmune disease since I was 13 I know what you mean by she feels great one day and terrible the next. I've been on prednisones doses as high as 60 mg and have tried almost every immune suppressant nothing is working. So when I say you don't get better it's because you have to work for it it doesn't just happen and when you do "get better" we call it remission because it's not the flu and and do you have to work for remission you don't work to get bett

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That's awful :( is there anyone else that can support you? If not please check whether there are and support networks in your area, you really don't have to go through this alone

My brother has ALPS (autoimmune lymphoproliferative syndrome). It's super rare and has a high fatality rate but as he got older, his body fought it off. Now he's healthy as a horse. Don't give up!

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