Today, the month-long muscle spasms that have been shoving my hips out of joint went to a new low. My whole body feels like I have the flu, with muscle aches and tension. Ehlers-Danlos Syndrome does not mix well with PMDD. FML
Collection
Fall
Dead leaves, the first cold of the season and an umbrella flipped inside out: fall, the season of grace.
Today, I started my period, complete with cramps, diarrhoea, a headache, bloating, and aching legs. Apparently my body didn't get the message that I had a total hysterectomy a month ago, including my ovaries, tubes and cervix. FML
Today, I got back from a holiday. I've been suffering from debilitating muscle spasms in my back for over a year, causing migraines and immobility. After all the physical therapy, drugs, and tests, it seems it was caused simply by my mattress. A week of sleeping in the hotel bed completely alleviated it. FML
Today, I was diagnosed with a severe bladder infection that has left me in excruciating pain. A month ago, I had an ovarian cyst rupture. A few weeks before that, I badly sprained my elbow. Before that, I had the flu. I think my body is mutinying one organ system at a time. FML
Today, the pills my doctor prescribed for my extremely painful period cramps apparently have a side effect; excruciatingly painful cramps. I feel like I'm being repeatedly stabbed in the ovaries with a rusty fork. FML
Today, I found out that other than having to deal with cramps, headaches, PMS, PMDD, and all the other crap that comes along with periods, that it's also not uncommon to have painful gas during that time. 5 days left. FML
Today, I always say my body is my worst enemy because not only do I have irregular periods with heavy flow and bad cramps, I also get it when I currently have a fever, the highest temperature being 102.8 (checked under arms). FML
Today, for the first time in years, my period is early. I woke up at 5 a.m. with the worst cramps I've ever had in my life. Medicine isn't helping. It's literally so bad I feel like I want to throw up. It's fucking Christmas but hey, it wouldn't be 2022 if my garbage pile of a body wasn't ruining something for me. FML
Today, I woke up with my back super sore. I couldn’t get out of my bed without crying and great difficulty. The last time my chronic pain was like this it went on for three months and I could barely move. It was absolutely awful. FML
Today, I went for a massage because my shoulder's been hurting for months but I can't take decent painkillers because they'd react with my anti-depressants. It STILL hurts, but worse, across my upper spine, and I can't tilt my head back. I paid to look like The Hunchback of Notre Dame doing a swan impression. FML
Today, despite my muscles being just fine, my genetic collagen deformity has caused insane amounts of pain over things like 'walking' or 'sweeping the floor'. I used to be able to hike up mountains. FML
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Top comments
Battousai124 9
Who the hell votes YDI on someone suffering from a disease???
Anderling 33
For those who didn’t google: EDS is a grouping of 13 types of connective tissue disease. In “normal” people our tissue has a bit of give to it, but it stops before we get hurt. In EDS-patients, their tissue is so loose and unwieldy that it causes bodily harm. Some people can bend their fingers backwards at 90 degrees just typing on a keyboard and require splints to function, for example, but it can also affect your bones, blood vessels, or skin in similar messed-up ways. In OP’s case, their body can effectively dislocate itself with zero effort because the muscles that are *supposed* to keep that stuff locked down decided “ehhhhh close enough” and checked out. OP, I’m so sorry, and I genuinely hope the spasms stop soon.
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Comments (4)
Battousai124 9
Who the hell votes YDI on someone suffering from a disease???
Anderling 33
For those who didn’t google: EDS is a grouping of 13 types of connective tissue disease. In “normal” people our tissue has a bit of give to it, but it stops before we get hurt. In EDS-patients, their tissue is so loose and unwieldy that it causes bodily harm. Some people can bend their fingers backwards at 90 degrees just typing on a keyboard and require splints to function, for example, but it can also affect your bones, blood vessels, or skin in similar messed-up ways. In OP’s case, their body can effectively dislocate itself with zero effort because the muscles that are *supposed* to keep that stuff locked down decided “ehhhhh close enough” and checked out. OP, I’m so sorry, and I genuinely hope the spasms stop soon.
firefly13795 3
I get that alot too op, I also have Eds and it socks when it spasms and flares
bear7722 11
I can emphasize 💖💖 my husband has Ed's and it's hard for him some days