By LaineyLove - 09/05/2009 07:05 - United States
LaineyLove tells us more.
I'm the one who wrote the FML. I'll clear some things up for those of you who think I deserved it. The FMLs have to be short so I couldn't write the whole story. My main symptoms were severe joint and muscle pain along with cramping and headaches. The stomach pain was constant, not just when I ate bread. I had a hard time even digesting vegetables. I went to doctors practically every week and scoured the internet. I was finally "diagnosed" with fibromyalgia and IBS. My first Celiac blood test came back negative, but finally my gastroenterologist figured it out. I'm now gluten-free, and I'm feeling much better (although hungry). And I'm a pre-med student, so I'm not an idiot. I saw at least 5 different doctors and specialists. I even went to Mayo Clinic. Celiac can be a very difficult diagnosis as the symptoms are often non-specific. Thanks for all the tips on gluten-free food. It's time for me to start cooking!
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#4: Last I checked, not everyone Anglophone was British.
15, I'd be dead right now if I hadn't "self re-diagnosed" my epilepsy. The neurologist I saw told me that it was impossible for me to be having any seizures at all. The ER told me I was taking illicit drugs that just weren't showing up in their screenings. The general doctor said I was just "afraid to graduate college" and thats why I was so exhausted I couldn't sit up in bed on some days. When I finally managed to get in to a decent neurologist, my EEG results were so far off the charts she was shocked I was still able to talk, let alone walk around. If I had listened to the first three doctors I saw in their offices, or the first 4 ER visits, I would have given up on getting seizure medicine, instead of paying attention to my symptoms and realizing I had a serious life threatening disability actively going on. Self diagnosis of your symptoms is sometimes necessary if you want to live. Just because your condition is life threatening, and you have a lengthy well documented history of that condition, doesn't mean you can find a doctor who is willing to consider the possibility that its come out of remission 7 years after you were last on medicine for it, and 10 years after it was last active
Not eating bread isn't that bad - I can't eat it because of my epilepsy. Just as I can't eat any fruit, broccoli, carrots, shouldn't have potatos,salt, pretty much any flour (including rare ones like amaranth, teff, quinoa and millet - which the OP can have) or anything with any amount of soy, and i can still have quite delicious meals. The only thing that is annoying is packing a lunch for somewhere because the main part of all my meals needs to be fat but the OP shouldn't have that problem as she can eat things like rice and beans. I eat things like duck soup mixed with sour cream, lamb burgers (bunless of course), stir-fried steak and onions, and sesame seed chicken - everything is fried or coated in olive oil before being baked, with more added on while I eat. Thats a necessity for me, but I find it adds to the flavor. Try looking for recipes that fit into the Modified Atkins diet - its tailored for people with epilepsy. Its just the Atkins diet, but no calorie, protein or fluid restrictions with the goal of eating high fat, low carb, to keep your brain in a healthy state of ketosis. It can be stayed on for life, and people who have had heart attacks are 5 times less likely to have a second heart attack, (and have yet to die from a second heart attack in any studies) if they eat MAD, then people who eat the US food pyramid which is heavily grain based.
man. caeliac is quite shite. ps, you can get gluten free bread. not the end of the world.
celiac disease is most commonly diagnosed in people 50+ it is overlooked all the time or misdiagnosed as conditions like ibs symptoms can come and go at anytime so who ******* cares if it took her a year i am 18 and have had stomach problems my whole life and i was just diagnosed with celiac this year so **** all you people who say suck it up, its a major life change and adjusting is the hardest part
don't be so angry there are people allergic to sun light...
my mother is celiac. it sucks. but there are many products that are gluten free, don't worry! :D
celiac disease is most commonly diagnosed in people ages 50+ it is often overlooked or misdiagnosed as conditions like ibs symptoms can come and go at anytime so who ******* cares if it took her a year to figure it out i am 18, and have had stomach problems my entire life and i was just diagnosed with celiac disease this year so **** all you people who said get over it, its a major life change and adjusting to a new diet/lifestyle is probably the hardest part
I think that's the story of everyone with celiac's life. Ever since we're tiny we're taught gluten will calm our stomachs... haha, good luck in learning to live with it! And I mean that sincerely.
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that does suck. but. didn't the bread just make you feel worse? and if so, why did you keep eating it each time?
Im sorry... I know what that one is like... they thought I had that too. There are plenty of support groups out there, and a lot of alternatives.. keep your head up!!!!