Today, after three years of being in physical pain, which affects my health and daily life, I was told it's an undiagnosable condition that I'll have to deal with for a long time, as there are no answers and no fixable solution. FML
Collection
Halloween
A failed costume, stolen candy and a very real scare: Halloween, the one night when fear is allowed.
Today, after establishing that we have no idea what's wrong with me, only that it's chronic pain, my doctor informed me that even though I've been dealing with increasingly worse symptoms for years, I'm not a "good applicant" for pain medication. FML
Today, I'm in agony. I can't eat or drink anything without being in pain, including water. Doctors don't know what's wrong with me, and can only prescribe me painkillers I can only take 3 times a day. FML
Today, after decades of 24/7 cognitive impairment and being made to feel like a hypochondriac by many doctors over the years, I learned I have a severe physical illness. I kept researching and discovered my own illness, found out which test to ask for, and finally showed doctors proof. FML
Today, after months and months of trying to get my blood pressure back up to normal, and try to get back to optimal health, my doctor told me I'll never get better for the rest of my life. FML
Today, I found out that I have a chronic illness that has affected my brain function, heart and nervous system, and basically leaves me cognitively impaired daily and ruined my quality of life. Apparently it wasn’t just “all in my head” like so many neurologists claimed over the past two decades. FML
Today, after three months of wait, I expected to have a diagnosis and treatment plan from my doctor. Instead, I got an appointment with a surgeon "just to be sure", and an appointment with a GP to get referrals to two other doctors for more appointments. Meanwhile, my health gets worse and worse. FML
Today, I sit here struggling with such horrendous pain, which I've been dealing with now for the last six months or so, crying and contemplating whether I want to be around or not, as I'm so fed up with the pain. It's affecting me physically and mentally, I just don't know what to do anymore. FML
Today, I found out I have to have an operation. This will be the third in 3 years, all for completely unrelated reasons. I'm only 26 and apparently my body is already falling apart at the seams. FML
Today, my finally figuring out what the hell is wrong with my body has coincided with the local clinic closing for the weekend. I can't get referrals until they open again. Only three long, boring, miserable days and three long, agonizing, sleepless nights to go. And probably more even after. FML
Today, I was finally diagnosed with insomnia. The trouble is, because of my physical disability, I also have diagnosed chronic fatigue. Barely can stay awake during the day, can't sleep at night. FML
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Top comments
Charlie Given 28
find yourself a research hospital call and ask them for help they usually have resources not available to local physicians and hospitals
kaymyname 7
I had too had chronic pain for over three years with no clear diagnosis. Standing up to brush my teeth or take a shower was so painful it would bring me to tears. It wasn't until I switched doctors (3 times) and actually had someone who cared and wanted help me.That doctor sent me to a rheumatologist and I was diagnosed with an autoimmune disease that there is no test for. I was just tested for every other immune disease and combined with my symptoms and blood work I was finally given a diagnosis. I was prescribed medication and its the best I've felt in years. There are doctors who will help! It may take awhile but you have to find them. Hang in there OP!
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Comments (6)
Charlie Given 28
find yourself a research hospital call and ask them for help they usually have resources not available to local physicians and hospitals
kaymyname 7
I had too had chronic pain for over three years with no clear diagnosis. Standing up to brush my teeth or take a shower was so painful it would bring me to tears. It wasn't until I switched doctors (3 times) and actually had someone who cared and wanted help me.That doctor sent me to a rheumatologist and I was diagnosed with an autoimmune disease that there is no test for. I was just tested for every other immune disease and combined with my symptoms and blood work I was finally given a diagnosis. I was prescribed medication and its the best I've felt in years. There are doctors who will help! It may take awhile but you have to find them. Hang in there OP!
TwoBytesCarley 27
I agree with both comments above. I also struggle with chronic pain, actually paralyzing me for several days at a time. It took 2 years, seeing several doctors and specialists and finally going to the Mayo Clinic to receive a diagnosis. Although the pain will never completely go away, medication, yoga and changes to my diet have made a massive difference. In my search for an answer I had two doctors in particular pretty much tell me exactly what you’ve been told. Don’t listen to them. Make sure to be referred to specialists as GPs aren’t always up to date on all issues, and if you can get to a medical research facility, do so.
eellik 12
Not as bad as some others here, but I suffered from weird leg pains at night which the orthopedist couldn't diagnose. Xrays came back normal, no arthritis or rheumatic condition. Then I started using a home exercise bike and did some stretching after that, which did away with the random pains. My guess is that it was the tendons or muscles that caused this, and just some light sport was enough to get rid of it.
Amanda G Rich 23
This is why I hate doctors. same happened to me but instead of pain it's constant vomiting and falling over. I can't work or function but can't get disability because it's undiagnosed. I would say go to other doctors, but that never helped me. Try to get into a mayo clinic. you'll have to apply like a dozen times because they usually deny people due to other more worrisome cases. But I think eventually they'll get you in. Gotta have some hope you know?
IHaveThePower 18
You might ask for a referral to physical therapy and see if a physical therapist can at least diagnose you. They tend to be more familiar with chronic pain causes, and sometimes their exercises help lower the pain, especially if you combine it with heat, baths, and massage when you can. (As weird as it sounds, I cannot overstate the helpfulness of 'soak hurting body in bath with Epsom salt bubble bath' in treatment. Even just relaxing your muscles will help--tense muscles make pain worse, and hot water + fancy salts works like magic. Hot springs are great too, if you're out on the West Coast.)