By LaineyLove - 09/05/2009 07:05 - United States
LaineyLove tells us more.
I'm the one who wrote the FML. I'll clear some things up for those of you who think I deserved it. The FMLs have to be short so I couldn't write the whole story. My main symptoms were severe joint and muscle pain along with cramping and headaches. The stomach pain was constant, not just when I ate bread. I had a hard time even digesting vegetables. I went to doctors practically every week and scoured the internet. I was finally "diagnosed" with fibromyalgia and IBS. My first Celiac blood test came back negative, but finally my gastroenterologist figured it out. I'm now gluten-free, and I'm feeling much better (although hungry). And I'm a pre-med student, so I'm not an idiot. I saw at least 5 different doctors and specialists. I even went to Mayo Clinic. Celiac can be a very difficult diagnosis as the symptoms are often non-specific. Thanks for all the tips on gluten-free food. It's time for me to start cooking!
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hey me too!!! Your life isn't ******, it just becomes a regular part of life, and plenty of grocery stores and restaurants are becoming aware of it. You are definitely not alone...
My coach and a teammate have that. Sorry about it ... that really sucks.
(author again) @ #83 - I feel your pain. I was misdiagnosed multiple times and put through various painful tests including an EMG (ouch, electrocution!). There were some days I was in so much pain that I couldn't move. The fatigue is also extraordinarily debilitating. I sometimes slept 20 hours straight. I hope your intestines heal nicely! @ #81 Thanks for all the kitchen tips! I can tell I've been "glutened" a few times since I've been on the diet. I didn't know pre-made soups had gluten! Ughhh. I live in a small town without a whole foods or many of those big city restaurants with the gluten free menus. I have to cook for myself or order pre-made food online. It's rough for a college kid without a kitchen. I know my life isn't ******. It was ****** before when I couldn't move because of the joint, muscle and stomach pain, not to mention the horrifyingly itchy dermographism. Now, I have my life back, but the irony remains that my parents and doctors told me to eat simple foods like bread to ease my stomach pain. And the stomach pain WAS diagnosed as IBS and lactose intolerance, so I'm not stupid for trying to live with it. I was dismissed by multiple experts.
Why do so many people have Celiac disease? I thought it would be more rare.
yep, got that. and i'm lactose intolerant. i can't eat food anymore.
my friend has that shes 15 and was diagnosed about... 5 months ago luckily theres alot of foods that are gluten free and even some restaurants offer a gluten free menu its actually a lot healthier good luck!
i have it as well. in the past few weeks, honey nut chex (and a few other chex) has changed to gluten-free. i know its tough to find any good cereals so thats been a great switch for me
Lmao! being alergic to bread is like being alergic to all types of meat and cheese. including transfat and saturated fat! FYL! sry about that D:
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that does suck. but. didn't the bread just make you feel worse? and if so, why did you keep eating it each time?
Im sorry... I know what that one is like... they thought I had that too. There are plenty of support groups out there, and a lot of alternatives.. keep your head up!!!!